I have Lyme disease and have had it since at least Feb 2015. Even when the Lyme strain is not life threatening, the array of symptoms from this bacterial infection can be mind-boggling. I have struggled with Lyme disease arthritis and deterioration of ligaments/tendons, along with loss of balance, dry eyes, dry skin, and minor loss of memory. Other people have experienced vision problems, sensitivity to light, tinnitus, senility, petite mal seizures, grand mal seizures, and paralysis.
I am head of a Lyme disease group in Richmond Virginia. We have over 200 people on an email list. Because of CDC restrictions on Lyme disease diagnosis, such that 5 different antibiotic bands have to be found in an IgG Western blot test for a person to be diagnosed Lyme disease positive, most people aren’t diagnosed. Doctors and nurses are forced to follow this testing procedure, which leaves many people in our area untreated, such that they’re trying all sorts of remedies that they find on the Internet and are paying for out-of-pocket.
Worst of all the CDC does not acknowledge that long-term Lyme disease exists, as if all Lyme disease can be cured with 30 days of doxycycline. Now that the CDC acknowledges that over 300,000 people a year contract Lyme disease, the Lyme disease situation in the United States is beyond bizarre. The CDC acknowledges the problem, but won't acknowledge that cases last beyond 30 days. Anything over 30 days is called: post-treatment Lyme disease syndrome (PTLDS). Again the result is no insurance coverage.
I personally have been turned away by a nurse practitioner and an MD Rhematologist, because I didn’t have all 5 bands positive for the Western Blot (despite having several tick bites and having band 41 positive, which is immune system reaction to something with a flagella, a tail for swimming. Human cells do not have flagella). People in our area share names of doctors and testing facilities, who will actually help with Lyme, like classified information, because of fears that our state medical board will take away their licenses to practice.
Yes, if you are in the woods or even in your yard, check yourself for ticks when you come in from being outside. The good news is that ticks can take several hours to find the right spot to attach, so you may remove the tick before it bites. Another option is to put a lot Damminix tick tubes around your yard and hope that the Lyme disease carrying ticks die as nymphs or larvae and never make it to adulthood.
I have a lot of unwanted expertise on this disease if anybody needs help. My current protocol is low-dose antibiotics rotated every 2 months, Rawls restorative protocol, lauricidin for yeast infection in blood due to Lyme disease immune system disruption, serrapeptase for biofilm break up, chlorella for detox, charcoal for detox, rife radio wave treatment every other day as an auxiliary antibiotic, Epsom salt baths daily to relax muscles, magnesium oil on problem muscle areas twice a day. Hope this helps someone, Ben
